MS AND CCSVI

MS and Chronic Cerebro-Spinal Venous Insufficiency (CCSVI)

You’ve probably heard a few things about CCSVI.  Here’s the rub.

Dr. Paolo Zamboni, noted vascular surgeon at the University of Ferrara, Ferrara, Italy says that chronic cerebrospinal venous insufficiency (CCSVI) is strongly associated with multiple sclerosis.  But, what is CCSVI?

CCSVI is a condition where there is a reduction in the normal size of the inner open space in certain veins of the neck and chest cavity that drain blood from the brain back to the heart. 

The decreased size (produced by webs and malformed valves of the veins) causes less than the normal drainage of the blood from the brain; over all, the brain’s blood flow is less; in addition, there is an increase in the time it takes for the blood to leave the brain after it enters it.  According to Dr. Zamboni, these changes lead to the symptoms that occur in multiple sclerosis.                         

To relieve symptoms in multiple sclerosis sufferers, Dr. Zamboni performs balloon dilatation of the veins when CCSVI is present.  Apparently, he achieves good results in relieving symptoms. 

Now, a treatment such as this requires a distinguishing name.  So, let’s call it the “liberation treatment”.  [See references  below].

References   

1.  J  Neurol Neurosurg Psychiatry. 2009 April; 80(4): 392–399, Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis, P Zamboni, et al

2.  Vascular and Endovascular Controversies Update BIBA Medical, Ltd, 2009, 71-79, Rationale and preliminary results of endovascular treatment of multiple, P Zamboni, et al

That’s it in a nut shell.

To Your Health,

 

Dr. Rudy Cartwright

PS: As usual, please leave your comments below.

81 thoughts on “MS AND CCSVI

  1. Was on Tysabri in 2007. Went to China, had stem cell, (didn’t work). Going back on Tysabri 2011. Losng all muscle strength, don’t walk very well at all.
    Had a very active life, took a bad fall involving my neck. Diagnosed 3 years later after enough symptoms developed, to make me go to a Dr. Was always healthy, and besides M.S. still am.
    Am totally interested in the Liberation procedure. I think it is what is going to work for me and give me my life back. Medicine is not the answer. Even with the Tysabri(not a cure), helps keep down inflamation in the brain, keeps things from progressing further, faster.If only pharmacuticals didn’t have so much to lose.
    Any info on the Liberation procedure, please pass on. Very interested.

    HOPE A BETTER 2011 for EVERYONE!!!

    MERRY CHRISTMAS

  2. I am in the process of going to clinic in new jersy for this procedure, i live in ohio, someone mentioned indiana, this would be alot closer..no flying involved would be great..I have had ms for 21yrs, in wheelchair, I have alot of neck pain rt side…I’m praying that I get alot of good results from the procedure….have to think positive & with GOD ANYTHING IS POSSIBLE…HAPPY NEW YEAR 2011

  3. I am surprised. My doctor informs me that my problem is the restricted blood
    flow in the veins at the back of my head/neck. No treatment has been offered
    or recommended. Walking is a problem. Running is impossible. Headaches,
    dizziness balance problems are always present. With that goes A Fib,
    requiring cardio versionm sometime six times a year, sometimes twice a year.
    Seems I’m a mess, and will probably remain one.

  4. I have Ms for 2 years and just had a baby 7 months ago I have had 3 flare up and want to know how I would qualify for this test , I really am very interested in this . please get back to me asap thank you

  5. thanks as always for all your countinued research and info that u pass along i really appreciate all the best in the new year i am interestedin this procedure.

  6. Over a year ago I asked my Neurologist how poor blood circulation and MS were connected and he dismissed it as irrelevant. However I know my body and I have noticed that the blood circulation on my weak side is very poor.In fact after a scan it was picked up that the blood flow in my weak leg was minimal from my Knee down. The leg is very cold and blue which is obvious because of the lack of oxygen.
    What amazes me is that all the body systems are interconnected but some specialists
    seem to only concentrate on their area of expertise.

  7. There is an alternative treatment called Chelation that showed a noticable difference after 3 treatments.
    The treatment is safe, free of chemicals and clears blockages.
    This is done in a simple intrevenous procedure which takes about 2 hours weekly.
    8 procedures are said to bring about considerable change and this procedure is further complemented with intrevenous vitamin c.
    I saw a difference in my daughter after 4 sessions and sadly the treatment was stopped for financial reasons. Before the treatments she had to be aided to walk and after 4 she walked confidently unaided on very uneven ground. I can only imagine how she will be when she has the full treatment.
    This treatment confirms the fact that blocked veins are a contributing facter in the debilitating symtoms of MS.
    Along with Sue Ellen and Dr Rudy Cartwright I see a real possibility for healing from MS synptoms.

  8. Dear All,

    We do this procedure in India at Fortis Hospitals, Bangalore and have had very good results from it. Dr. Mohammed rEhan Sayeed and Dr. Gopi A are the doctors who do it. I am happy to see that many of our patients whom we have treated have given their opinions.

    Thanks

  9. I have broken left wrist. No help yet.
    I’m on ampyra for 2 months, no help on-copaxone — year-2
    4, 2005 diagnozed.
    Under severe stress; still stressed out.

    I’ve fallen many times 5 on my head; ill do vitamin D.
    Trying to move, little help; must walk with walker
    but i’ll get trough it.

    Viv Peck

  10. I have primary progressive MS which I have had for almost 18 years.I am now wheelchair and bed bound after I broke my right leg and was found to have osteoporosis.I have no movement in arms and legs.Many times I find life almost unbearable.But hope keeps me going.I have had stem cell treatment three times – Holland,Germany and China.China was slightly successful in that my breathing and voice improved.I live in Perh,Western Australia and no one here seems to be proactive in treating the disease.When I find out the closest location for the liberation treatment I hope to definatley give it a go.Many thanks to Dr Cartwright and Sue Ellen.The mere fact they remain in touch is my life line to sanity.God Bless.

  11. I’m so interested in having the testing and (if blockages found), the Liberation procedure. In the U.S., I believe they perform it in Atlanta, GA and in Buffalo, NY, as well as other locations. Thanks so much for the info on getting insurance reimbursement– I know my doc would agree to whatever diagnosis in order to assist in that. I’ve had m.s. for over 20 years, still walking and working full time, but definitely have symptoms (horrible fatigue, balance problems when walking, sometimes vision problems, sleep issues, etc.) But I have taken supplements for years (tried to keep up with the latest in natural health– removing Big Pharma’s influence) when choosing supplements. I also eat healthily and exercise as much as I can manage. I have taken LDN for the past several years, which I believe has helped tremendously. Tried Avonex, Copaxone, Tysabri over the years. None helped my symptoms. LDN (which is oral! And inexpensive!) and supplements have kept my life and body going much better than when on the standard meds. God Bless, everyone– may 2011 be the Year of the Cure! (or at least of Great Strides! 🙂 )

  12. I had myself checked through my Heart doctors referral at a hospital to do an ultrasound check of my bloodvessels in my neck down to my arms and no constrictions were found. I also have no constictions showing in any MRI’s. Is there another procedure that could possibly be done, and if so, which one. If you could let me know I will approach the approbriate Doctor with that information and see if I can get the Insurance to cooperate.

    Thank you,
    Carmen

  13. Hallo all,
    Have tried stem cells in kiev – no success at all. Have MS for 15 years with primary progressive ms. I am now in wheelchair and wondering and hopeing that CCSVi might help. Doctor advised against it but I am going to have the tests done to see about blockage of the veins.
    Costs wise will be a problem but we will hope something will come up
    Happy new year to all,
    Sean

  14. cleveland clinic in ohio is doing research on it i can say i read about it look on u-tube about it, i can say it would work because every time i take a niacin which opens up your vessels it takes away my tingling in my feet . sounds crazy but if we can take away the sytoms of ms thats great.

  15. I am a registered dietitian who has MS. I just had the “Liberation Treatment” yesterday. My hands are no longer numb and my color is much bettter. I will keep you posted with any other changes I see with my MS.
    Ann

  16. Four cousins have had treatment in Phoenix, benefitted greatly.
    I ordered 3 mos of ‘liquid angioplasty’,forgot the name, but a beverage.

  17. My comments are to all wondering about the treatment for CCSVI. Much info. can be obtained from CommunityCare.com This facility is in Albany, NY and has experience doing the procedure.
    An “ordinary” Ultra-sound scan cannot detect properly the blockages/malformations found in CCSVI, nor can the standard MRI. Training in performing the proper method in these scans is highly specific. An Interventional Radiologist or Vascular Surgeon knowledgable in CCSVI is who you need to contact, such is at Community Care.
    I had the procedure done on Nov. 12, 2010 in Albany, NY. While this procedure has been VERY beneficial for MANY, it just did nothing for me.
    Both my jugular veins & azygous vein were found to have blockages & received angioplasty to all. A mystery why I’m part of the 1/3 that find no benefit, but perhaps time will reveal more info. than is known at this point in time.

    I was diagnosed with MS 30 years ago that turned Secondary Progressive in 1994. I have an EDSS of 6.5. I’m aware that many folks worse off than I have experienced much improvement from the procedure, so don’t think that those of you with PPMS, SPMS or less affected can’t/won’t benefit from this procedure! I know of those who have been wheelchair bound for years & have good results!
    You can’t know if you might be one of the 1/3 that has good results, or the 1/3 that has even modest results unless you try!
    Best wishes to all that step out in faith. May you be pleasantly surprised with a better quality of life. – Maggie

  18. I recieved CCSVI on Jan 18, 2011 at Pacific Interventionalists in Newport Ca. I have had Ms for 18 yrs., in a wheelchair for seven years. the first thing I noticed was the ability to rotate my feet. Sinse then my feet are no longer greyish blue and I can see the veins in my feet for the first time in years. I am working with what I’ve got and hopeful for further improvements. The cost for the test and procedure is 10,500.00.
    I had three veins ballooned. This was easier for me than having my stomach scoped or a colonoscopy, aside from having to travel. My experience was very positive. I did step out in faith and continue to do so daily. God bless all of you.

  19. A FRIEND OF MINE FROM SOUTH AFRICA IS GOING TO BANGLORE TO HAVE IT DONE,WILL KEEP YOU POSTED ON THE RESULTS.I AM ON TYSABRI,GOT LOTS OF RELIEF FROM AYURVEDA BUT IT COSTLY IS TO KEEP GOING TO SOUTH INDIA WERE TREATMENT IS EXCELLENT WHICH IS NOT DA SAME IN SOUTH AFRICA

  20. I am considering having diagnosic testing done for CCSVI at a private clinic in Canada. As the liberation treatment is not offered here, if the tests indicate blockages, could anyone tell me whether the diagnostic testing received in Canada would suffice for treatment elsewhere or would they automatically need to be repeated?

    Thank you in advance for your feedback.

  21. I had my treatment done in Tekwila, Wash. last Saturday for $5800. Best deal, best of care and better yet I feel wonderful! No more ‘cog fog’, the burning in my lower limbs has abated, better sleep and have had more dreaming and I think my step is better. It’s early and I’ve had symptoms a long time(35 years)off and on. I’m 70 and live in B.C.. There are several Vascular Access Clinics in the States. So find the nearest one to you. I had had an MRI done in Vancouver but the info did not get to the clinic before my procedure. Anyway Dr. McGluckin says you can go without it. I wish everyone with this weird condition the best of luck. Write me if I can answer anything.

  22. Like Micheal (February 15,2011)I am considering on having a Diagnostic Testing for my M.S. . If I have this done in Canada where can I go in Canada to have the CCVSI surgery . Is there any possibility that any of our Canadian provinces will cover the cost for treatment????

  23. contact Judy Pentz via facebook. She had the CC procedure done and is seeing improvements. The procedure was performed in Maryland at a clinic and she highly recommends this place as the IR and nurses were spectacular and around $8,000 for the actual procedure. So, the CCSVI procedure is being done here in the US.

    I do have a question for anyone out there in MS land. I had the procedure to check for clogged jugulars and it didn’t really show anything i was told. I’m assuming the azygous vein is blocked but my ? is this: Has anyone done hydrotherapy with an air injection system bath? The injectors are located along the path (meridian)of the central nervous system and produces a mild massage> I’m considering having one installed in my home. I have no pain, started doing yoga stretches and take nattokinase for circulation and that works really well. Also take vit. D as well as LDN.

  24. I have shared my interest in CCSVI and liberation procedure with two doctors-my neurologist and my osteopath. Neither doctor will agree to write the orders for me to even be tested for vein blockages/narrowing. This is certainly not the first closed door I have faced. The doctors like to claim that the studies conducted so far do not give us enough information, and so the patients are expected “to wait and see” as we often “wait and get worse.” Many MS patients do have prolems in the veins. That has already been established. However, you must have determination, energy, and persistence to find an interventional cardiologist to work with you. They expect us to prove we have the CCSVI condition, but then we find obstacles to getting the tests done. It is a bit ridiculous. It’s an uphill battle.

  25. PLEASE DO NOT LOSE HOPE GOD IS WITH YOU ALL AND JUST KEEP THE FAITH THEY WILL FIND A CURE WE HAVE TO BELIEVE IN GOD /START THINKING OF WHAT YOUR BODY NEEDS TO GET HEALTHY AND GO WITH THAT HERBS VITAMINS -EXERCISE AND BELIEVING IN A GOD PRAY /MIND BODY AND SOUL THE MIND IS A POWERFUL PART IT CAN HEAL/ CHECK THIS GUY OUT ON U-TUBE DR NEMEH GOD SENT HIM DOWN TO HEAL OTHERS PLEASE JUST LISTEN TO HIM AND THEN THERE IS ANN BOROCH SHE IS AMAZING JUST CHECK THEM OUT /POSITIVE PEOPLE IS WHAT WE NEED /NO NEGATIVE WORDS HERE AT LEAST I DONT I WANT POSITIVE AND BELIEVING THAT WE ALL CAN LIVE A GOOD LIFE EVEN IF WE HAVE MS / WE ALL IN THIS TOGETHER LIKE PEANUT BUTTER AND JELLY LOVE YOU ALL APRIL

  26. Pingback: 2010 Articles – CCSVI.MS| Chronic Cerebrospinal Venous Insufficiency (CCSVI.MS)

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